Genetic Counseling, Professional Values, and Habitus: An Analysis of Disability Narratives in Textbooks

Research output: Contribution to journalArticle

Abstract

This article analyzes narrative illustrations in genetic counseling textbooks as a way of understanding professional habitus--the dispositions that motivate professional behavior. In particular, this analysis shows that there are significant differences in how the textbooks' expository and narrative portions represent Down syndrome, genetic counseling practice, and patient behaviors. While the narrative portions of the text position the genetic counseling profession as working in service to the values of genetic medicine, the expository portions represent genetic counselors as neutral parties. Ultimately, this article argues that this ambiguity is harmful to the production of a professional habitus that is consistent with espoused professional values concerning respect for persons with disabilities and the promotion of psychosocial counseling.

Original languageEnglish (US)
Pages (from-to)515-533
Number of pages19
JournalJournal of Medical Humanities
Volume39
Issue number4
DOIs
StatePublished - Dec 1 2018

All Science Journal Classification (ASJC) codes

  • Health(social science)
  • Health Policy

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