Genetic Counseling, Professional Values, and Habitus: An Analysis of Disability Narratives in Textbooks

    Research output: Contribution to journalArticlepeer-review

    Abstract

    This article analyzes narrative illustrations in genetic counseling textbooks as a way of understanding professional habitus--the dispositions that motivate professional behavior. In particular, this analysis shows that there are significant differences in how the textbooks' expository and narrative portions represent Down syndrome, genetic counseling practice, and patient behaviors. While the narrative portions of the text position the genetic counseling profession as working in service to the values of genetic medicine, the expository portions represent genetic counselors as neutral parties. Ultimately, this article argues that this ambiguity is harmful to the production of a professional habitus that is consistent with espoused professional values concerning respect for persons with disabilities and the promotion of psychosocial counseling.

    Original languageEnglish (US)
    Pages (from-to)515-533
    Number of pages19
    JournalJournal of Medical Humanities
    Volume39
    Issue number4
    DOIs
    StatePublished - Dec 1 2018

    All Science Journal Classification (ASJC) codes

    • Health(social science)
    • Health Policy

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