A Qualitative Study of Factors Influencing Decision-Making after Prenatal Diagnosis of down Syndrome

Amy R. Reed, Kathryn L. Berrier

    Research output: Contribution to journalArticlepeer-review

    9 Scopus citations

    Abstract

    Previous research has identified twenty-six factors that may affect pregnancy management decisions following prenatal diagnosis of DS; however, there is no consensus about the relative importance or effects of these factors. In order to better understand patient decision-making, we conducted expansive cognitive interviews with nine former patients who received a prenatal diagnosis of DS. Our results suggest that patients attached unique meanings to factors influencing decision-making regardless of the pregnancy outcome. Nineteen of the twenty-six factors previously studied and four novel factors (rationale for testing, information quality, pregnancy experience, and perception of parenting abilities and goals) were found to be important to decision-making. We argue that qualitative studies can help characterize the complexity of decision-making following prenatal diagnosis of DS.

    Original languageEnglish (US)
    Pages (from-to)814-828
    Number of pages15
    JournalJournal of Genetic Counseling
    Volume26
    Issue number4
    DOIs
    StatePublished - Aug 1 2017

    All Science Journal Classification (ASJC) codes

    • Genetics(clinical)

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